Books about raising a child with down syndrome

Tips on raising a child with down syndrome ask dr sears. According to the national down syndrome society, down syndrome occurs in one of every 733 live births. There arent enough childrens books about down syndrome, and this. A child with down syndrome is just like any other child, needing doctors appointments, backtoschool clothes, and rides to birthday parties. The joy of raising a child with down syndrome youtube.

As a result, iceland is on its way to eradicating down syndrome. Including the experiences and advice of parents, this should be one of the first books parents read upon receiving their child s diagnosis. Confessions of the mom of a child with down syndrome during the teenage years. Down syndrome reading strategies raising robust readers. Down syndrome parenting 101 is a savvy book for parents. When our daughter was first diagnosed with down syndrome at birth, i knew very little about her condition. Books for parents of children with down syndrome 61 books. The parents guide to down syndrome book by jen jacob.

Dec 10, 20 tips for raising a child with down syndrome breastfeed as long as possible. As a pediatrician for 40 years, i have been involved with many families confronted with the task of raising a child with down syndrome. I had vague fears of what turned out to be outdated. What are some advice books for fathers of down syndrome. Dec 17, 20 the syndrome is a disability, as she makes clear, not an illness and certainly not a tragedy. The down syndrome transition handbook helps parents with the enormous and often overwhelming task of preparing a child with down syndrome or other intellectual disability for adulthood.

Stories of a down syndrome diagnosis, available globally. Learn your likelihood of having a baby born with down syndrome, as well as some of the issues faced when raising a child with special needs. As a part of her role, she creates, moderates, and manages small online groups for more than 1,500 new and expectant parents. Google scholar sloper p, knussen c, turner s, cunningham c. Down syndrome resources for new and expecting parents. Jen jacob is the cofounder and vice president of the down syndrome diagnosis network. The financial and emotional needs of an affected child may be more than they can bear. The family that adopted six children with down syndrome. One family, genetic identity and muscular dystrophy. While plenty of parents seem eager to avoid the prospect entirely, talking to those in the throes of raising a child with down syndrome reveals a much different perspective. In the book, the child with down s syndrome is beautiful. But instruction can be easily adjusted and adapted for all ages and ability levels. Remember that raising any child fills your life with unimaginable delight and difficulties. Advice, information, inspiration, and support for raising your child from diagnosis through adulthood ebook written by jen jacob, mardra sikora.

I\m working on an article for which will offering advice about raising a child with down syndrome. Down syndrome center for parent information and resources. Whats it like raising a child with down syndrome in tanzania. Separating a son from a down syndrome diagnosis in raising. Raising henry is an important, hopeful book for that reason alone, and its easy to be on ms. Its challenging getting past drivethru windows with a child blowing kisses and stealing the hearts of all the employees. Your son or daughter may also have begun to notice the differences between themselves and their peers. Advice for raising a child with down syndrome thin. Choosing whether to have a child with down syndrome. Children with down syndrome aged less than 25 years in 2004 were identified from the idea intellectual disability exploring answers database, a populationbased register of children with intellectual disability in wa.

It is full of practical tips and stepbystep instructions for envisioning their childs future, developing a transition plan and seeing it through. The seven are now learning to function together as a. Jen is the author and a contributor for unexpected. Learn practical tips to take the best care of your child, your family, and yourself. We realize our loved ones may have special needs, learning disabilities, and cognitive challenges. The syndrome is a disability, as she makes clear, not an illness and certainly not a tragedy. Downs syndrome novel tugs at americas heartstrings.

I have my list of bulletpoints that i would offer, but i\m curious what you all. The best down syndrome book resources for parents and. This is rather a book written from a parents perspective. Covering the best practices for raising and caring for children with down syndrome through age five, this book is invaluable to new parents. What its like to have a child with down syndrome duration. Top ten books for parenting children with disabilities. Jun 16, 2007 in fact, she so enjoyed raising a child with down s that she also adopted a baby girl with down s. By day mardra sikora balances a patchwork of community, advocacy, work, and family. First is to realize that these children have differences more than disorders and disabilities. She lives in iowa with her husband and four children. A reading list for parents of kids with down syndrome.

Many textbooks have already been written about down syndrome by professionals so i didnt set out to write another one. Its full of uplifting advice and best practices gleaned from hales personal and professional experiences raising a son, now an adult, and 20 years spent tutoring children, teens, and adults. As the father of a daughter with ds, i can honestly say that pretty quickly he will realise 98% of raising a child with ds is the same as raising any other c. The real challenges of raising my child with down syndrome being the mom of a child with down syndrome has its challenges, but i dont think people know all of the challenges. The contributors educators, medical professionals, adults with down syndrome, and, primarily, parents of children with down syndromealong with editor skallerup, mother of a child with down syndrome. Ndsc is also an authoritative source of information on down syndrome, offering such resources as its new parent package, a collection of materials refined over years to provide new and expectant parents with an initial understanding of the challenges and joysof raising a. Ndsc is also an authoritative source of information on down syndrome, offering such resources as its new parent package, a collection of materials refined over years to provide new and expectant parents with an initial understanding of the challenges and joysof raising a child with down syndrome. Separating a son from a down syndrome diagnosis in. In the book, the child with downs syndrome is beautiful. The memory keepers daughter by kim edwards, well paint the octopus red by stephanie stuvebodeen, bloom. This book has a little of everything raising a special child, becoming a single parent, etc. The mediocre moms guide to raising a child with down. Four years later, she looks back and wishes she could have encouraged her. The real challenges of raising my child with down syndrome.

Many teenagers and young people, including people with downs syndrome, struggle with selfesteem to a certain degree. Raising a child with down syndrome focus on the family. Down syndrome parenting 101 is a savvy and inspirational guide for parents, grandparents, and anyone who shares life with a person with down syndrome. Other european countries like demark have followed suit, and the u. At raising robust readers, we believe in going beyond the alphabet and whole word instruction to provide a reliable foundation in independent reading for adults and children with down syndrome. And, remember, the current motto of the national down syndrome congress. Dec 27, 2017 the biggest way to heal that wound in his heart is for him to spend time with his sons. Readers might like to note that the information and advice provided in all the down syndrome issues and information development and education series is based on the view that we need to know what specific effects down syndrome has on childrens development in order to develop effective interventions and educational programs. Top ten books for parenting children with disabilities january 29, 2015 these ten books all make two similar points. Factors related to stress and satisfaction with life in families of children with downs syndrome. In fact, she so enjoyed raising a child with downs that she also adopted a baby girl with downs. Aug 28, 20 some great reads about raising a child with down syndrome, including books for siblings and parents see more ideas about down syndrome, down syndrome kids, syndrome. They have met the expected challenges, such as education and social integration, as well as the unanticipated challenges, such as societal ignorance and family conflict.

Because of their weak sucking, these babies require perseverance and expert lactation consultant advice, but brainbuilding with mamas help is the best way to start. The beauty of raising a child with down syndrome here is there is always a lot of space to play and run around. The spring family adopted six children with down syndrome and one with fetal alcohol syndrome. Covering the best practices for raising and caring for children with down syndrome through age five, this book is invaluable to new parents who have welcomed.

Down syndrome will not be the most interesting thing about your son or daughter. The biggest way to heal that wound in his heart is for him to spend time with his sons. He is the only child in his school with down syndrome, and the school district has given him the fancy title of exceptional child. The family that adopted six children with down syndrome and. Silver medalist, parentingfamily category babies with down syndrome, the trustworthy guide which has benefited thousands of families since it was first published in 1985, is completely revised and updated in a new, third edition. Discussing future opportunities, including employment and housing options. It was filled with pictures of children with down syndrome and featured quotes from parents about their experiences and hopes for the future. New book for parents of children with down syndrome parents. Recommended books for families of children with down syndrome. Raising robust readers is personalityperfect for those with down syndrome. Nov 29, 2018 the spring family adopted six children with down syndrome and one with fetal alcohol syndrome.

The seven are now learning to function together as a family as their parents guide each individual to. Down syndrome reading program raising robust readers. I used to wish my downs syndrome child had died but not any. Our son stephen is now 26, and as we look back we see things we did right and things we could have done better. Oct 24, 2017 for all of these parents, raising a child with down syndrome has altered their perspectives as they watch their kids love deeply, accept others unconditionally, express great joy, show genuine concern, and generally think the best of people and situations. Every child, every person, every living thing is unique, in big part, due. Advice, information, inspiration, and support for raising your child from diagnosis through adulthood by jennifer jacob, sikora, mardra and a great selection of related books, art and collectibles available now at. Raising a child with down syndrome has its unique joys and challenges. The mediocre moms guide to raising a child with down syndrome or any kid for that matter there are lots of articles out there praising parents as superheroes for raising children with down syndrome or other conditions, but what if youre a mom or dad whos perfectly average. Covering the best practices for raising and caring for children with down syndrome from birth to age five, this book is invaluable to new parents of a baby with. Theres a lot of misinformation about down syndrome, and for women who have received a prenatal diagnosis and for women who.